Sharing Health Information

Objective

This short survey is designed to gauge consumer attitudes toward sharing health information.

Description

To get started, click "Join this study"

The 28-question survey takes about five minutes to complete:

http://bit.ly/sharing-health-info-survey-form

The survey attempts to answer these questions:
  1. Are consumers willing to share genomic, medical and health tracking information for research purposes?
  2. Are consumers interested in receiving recommendations based on shared personal health information?
Responses to the survey are anonymous and cannot be personally identified.

Inclusion Criteria

Willingness to participate in the survey. Responses to the survey are anonymous and cannot be personally identified. To get started, click "Join this study" to access the survey: http://bit.ly/sharing-health-info-survey-form

Exclusion Criteria

None

Day 1: Sharing Health Information Survey

Complete the Sharing Health Information Survey, which takes about 5 minutes: http://bit.ly/sharing-health-info-survey

Discussion

eye0eye0

eye0eye0 joined as a data participant.

MaryMc

MaryMc joined as a data participant.

han575

han575 joined as a data participant.

ktpickard

ktpickard Melanie and I submitted a paper to AAAI 2014 based on the survey responses. "Big Desire to Share Big Health Data" was accepted, and we are presenting at the end of March: http://www.aaai.org/Symposia/Spring/sss14.php Thank you again for your participation. I will post a link to the paper once it is released.

gotnospice

gotnospice joined as a data participant.

melanie

melanie updated the stage of this study to be "In Progress."

melanie

melanie The study is now re-open directly on the Genomera platform - look at your results compared to others - USE THIS LINK TO TAKE THE SURVEY: http://bit.ly/sharing-health-info-survey-form

claudia_berlin

claudia_berlin joined as a data participant.

pierron

pierron joined as a data participant.

demoplayer

demoplayer joined as a data participant.

krs

krs joined as a data participant.

texlex

texlex joined as a data participant.

ktpickard

ktpickard updated the stage of this study to be "In Analysis."

ktpickard

ktpickard Thank you for participating in the Sharing Health Information survey. We achieved our goal and have over 100 respondents. The survey is now "In Analysis." I will post a link to the results when they are available.

shahin

shahin joined as a data participant.

elvis555

elvis555 joined as a data participant.

jahedmomand

jahedmomand joined as a data participant.

jacinto

jacinto joined as a discussion participant.

uwepleban

uwepleban joined as a data participant.

bigs

bigs joined as a data participant.

nusbaumz

nusbaumz joined as a data participant.

nicmt

nicmt joined as a data participant.

ktpickard

ktpickard Thanks to all for the February push--we now have 90+ responses. The study will change to "In Analysis" in a week or two. If you haven't yet, it's your last chance to complete the survey: http://bit.ly/sharing-health-info-survey

TroySadkowsky

TroySadkowsky joined as a data participant.

ktpickard

ktpickard We have 75 responses to the survey, and would like to have 100 responses by the end of February. As a favor, could you please ask a friend or family member to complete the Sharing Health Information Survey? To let others know, please Tweet or forward this link: http://bit.ly/genomera-sharing-health If you are just getting started, click the "Sign Up" link in the upper right corner of the study page to create an account. Thank you again to all who have responded.

erinep

erinep joined as a data participant.

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