Study Organizers Group
For all (current, previous, and prospective) STUDY ORGANIZERS. We discuss study design, analysis, recruiting, engagement. WE HELP ONE ANOTHER, as we are in this together. This group is also where Genomera posts about new features relevant to Organizers.
drdelorenzo joined and answered the questions: What brings you here? What do you hope to discover? “I am a geneticist interested in personal genomics and nutritional genomics. I just joined genomera and love the potential of it. I am looking forward to organizing my first study!”
ccwgoh joined and answered the questions: What brings you here? What do you hope to discover? “social media platform for collection/distribution of brain data”
jenwebster joined and answered the questions: What brings you here? What do you hope to discover? “I look forward to being part of a discussion on observational data methods, to contribute my experiences and learn from others.”
MedStartr joined and answered the questions: What brings you here? What do you hope to discover? “How to effectively crowdsource studies for our MedStartrs”
genomics joined and answered the questions: What brings you here? What do you hope to discover? “formulating improved platforms for curating genotypic-phenotypic data”
Bachers Assessing and including an individual’s “placebo quotient” as a non-linear dynamical aspect of any research project would be quite a feat, and as important a modulator as genomic information in my opinion. Training placebo “upward” to maximize the personal in personalized medicine is something we have seen to be the case in neurofeedback training where enhancements accrue across the entire range of human experience uniquely in each individual. The adequate exploration of these sorts of questions is what excites me about participating in Genomera’s ground-breaking approaches. Alan Bachers
Bachers Greg – That was a great presentation elucidating the future of democratized research possibilities in which all participants share equal value, responsibility, and results in true collaborative unions. In this vein, I keep wanting to take a fresh look at the universally present placebo, pegged at about 30% in studies where the normal distribution of the Bell shaped curve is imposed on it. To gloss your Gibson quote: “Placebo is already here. It’s just not evenly distributed.” It is the only active ingredient included in every study. In a given individual, it can be curative, or fatal if considered to be a “nocebo.” To appreciate, recruit, and enhance placebo, present varyingly in every participant, empowers potent contributions individuals bring to their own health optimization and disease maintenance. Rather than treating placebo as error variance, it should be celebrated as an active ingredient working “for” or “against” the “data” however it is manifest in each study participant. (see cont.)
ndiniro joined and answered the questions: What brings you here? What do you hope to discover? “New here, so kicking the tires a bit. Seems to be the obvious place to start :)”
shalini6 joined and answered the questions: What brings you here? What do you hope to discover? “I'm looking to connect with other clinical researchers and learn from them, as well as share my experiences.”
johnkholland joined and answered the questions: What brings you here? What do you hope to discover? “New ways to collect patient-centered endpoints in clinical trials using remote telemonitoring and IVR technologies.”
gbiggers Today, Genomera invited a batch of new people to join our beta. The account activations are starting to roll in. Now is a good time to post something in your studies to grab the attention of these new users and move them toward participation.
gbiggers We want to create a few 'starter' studies– studies that are short in length (like 7 days or less) with very accessible tasks (protocol). The idea is to organize some studies that are ideal for new Genomera members. A place where people can get their feet wet, and quickly experience the flow and benefits of participation. With the new tasks feature (create a new draft study and you'll see what I mean), these new studies can be perpetual, letting new participants follow the protocol beginning any time they join. Our ideas so far: 1. A simple sleep vs attention study, like Sleepless U. 2. Energy vs time of day taking Vitamin D. 3. An easy genome association study like share your genome and note which type of pain reliever seems to work best for you. Would any of you like to help organize one of these? What other ideas do you have for quick studies to engage newcomers?
jzempel Dear Genomera Organizers: we've been busy creating the next wave of study features and will be rolling them out over the next few days. Stay tuned for details. Now, more than ever, it is important for you to manage the "stage" of your particular study since it impacts the timeframe for data collection. In short, collection of participant data begins when you set your study "in progress". My guess is that this may raise more questions. But rather than attempting to answer those in one big post, please post to this group, and I'll do my best to respond and clarify as needed.
Bachers joined and answered the questions: What brings you here? What do you hope to discover? “Ways to develop questionnaires for those doing neurofeedback as either trainers or trainees.”
gbiggers We automatically added study organizers to this group so that we have a place to collaborate together. You may change your notification settings if you do not wish to fully participate. But we hope you stay, receive help, and offer help to others. Welcome to the new Organizers group. Let's get busy helping one another with our studies!